Mon 24 May 2010
Today I attended the section program, AIDS 2010: Evolution of Information, from the Relevant Issues, African American Medical Librarians Alliance, and Lesbian, Gay, Bisexual, and Transgender Health Science Librarians SIG. Some notes on the presentations:
Nicole Dancy of the National Library of Medicine spoke on HIV/AIDS information from the NLM and NIH, including a bit of history of the agencies’ initiatives and the barriers to accessing HIV/AIDS information, such as lack of computers with internet, privacy issues, lack of computer skills, lack of good information, and lack of relevant information for specific populations.
She noted that Standard and Express grants of $10,000-$60,000 are available for 18-24 month AIDS Community Information Outreach Projects. According to online materials,
The purpose of the HIV/AIDS Community Information Outreach Project is to design local programs for improving HIV/AIDS health information access for patients and the affected community as well as their caregivers and the general public. Emphasis is on providing information or access to health and medical information in a way that is meaningful to the target community, and increasing the awareness and utilization of NLM online health and medical resources in the HIV/AIDS community.
Nancy also pointed to three online resources with HIV/AIDS information:
-alaskanaids.org – The Alaskan AIDS Assistance Association
-healthconnect.htu.edu – HT Health Connection
-aidsinfonet.org – The AIDS InfoNet, “providing HIV/AIDS treatment information in non-technical language in various languages”
As well as:
-aidsinfo.nih.gov – AIDSinfo
-aids.nlm.nih.gov – HIV/AIDS Information from SIS
-phpartners.org – Partners in Health Information for the Public Health Workforce
Finally, Nancy emphasized the importance for projects when partnering with local agencies of respecting the community, acknowledging their expertise and their knowledge of the needs of the community, that community ownership is essential, that successful collaborations involve all parties in planning, and parity and consensus building is important.
Michael Plankey – Epidemiologist
Michael spoke about the epidemiology of aging and HIV, including race/ethnic disparities, and the shifting age demographics of people living with HIV. He discussed the cobmorbidities associated with HIV and aging, that opportunistic infections are no longer main causes of HIV-related deaths – renal disease is #1. He spoke about a number of comorbidities I wouldn’t normally think of, including insulin resistance and diabetes. This was a great knowledge building session for realizing that when providing information that HIV/AIDS may come with a variety of complications for adults who are living longer with the infection and for which information is also needed. Toward the end, he spoke about neurocognitive issues, including discussion of this Nov 2009 article, Another Kind of AIDS Crisis.
Sharon Stash, from AIDSTAR-One (through USAID)
AIDSTAR-One provides technical assistance and knowledge management to 80 countries with PEPFAR teams/programs, including a monthly newsletter with most recent scientific and programmatic literature for HIV prevention efforts around the globe. Sharon pointed out a number of online resources AIDSTAR-One make available related to HIV/AIDS program development, including the Promising Practices Database (of good programmatic practices), the case study series (on emerging areas of HIV prevention), a technical brief series, and technical consultation reports based on work with experts in prevention.