In a nutshell…
End result for NLM (April 23, final budget): 19.2m, 5.5% less than FY2012. NLM will not be dismantling critical services and innovations – but will have to make some cuts. Effects will be more evident in 2014. Most money goes to pay for “brainware,” also known as: NLM employees.
ILL requests to DOCLINE are down 50% in the last 10 years: 2002-2012. To give context, that is 1.5 million from 2.5 million requests. NLM is investigating reasons for the decline, empowering focus groups to discern how users access biomedical info and the challenges in providing ILL licensing. There are no plans to remove DOCLINE.
Full Text in PubMed/Medline:
27% of PubMed citations link out to free full text. One driving force are traditional publishers reacting to open access initiatives and research funders have required the deposit of manuscripts from funded studies.
Expanding access to data BD2K: Big Data to Knowledge initiatves and funding with an emphasis on development of methods and tools to allow for more effective use of the big data and discover new knowledge.
Clinical Research Transparency:
Clinical Research Transparency now an international priority; emanates from a sense of outrage around high profile cases where results were not published, or ”selective” data was published. In response, ICMJE – encourages registration of clinical trials and won’t publish if not registered.
ClinicalTrails.gov is now a large international database with 144k studies from 188 countries. Only 44% are US only. More data in place, analyzable than ever before. Because NLM has given users the ability to download the records or access them – you can create your specialized interface for the data.
SNOWMED is now it’s own international language; 22 members from 9 initial members – NLM being the member for the US. It is moving towards being a truly international standard. NLM providing training materials.
GTR (Genetic Testing Registry):
3005 tests registered by 290 labs in 37 countries. Integration of genetic data into clinical care and public health. SNOWMED and LOINC codes connected. Becoming the international standard for dealing with the location of genetic variations. More digitization guidelines linked to tests.